Wishing it was different

First of all, I should apologise. I haven't been in a blogging frenzy lately, so updates have been few and far between. I have also been busy. However that is not the point, the point is I have been trying to pretend everything is OK, when everything is patently not OK. So I am back in the blog, and there are lots of things I want to say, quite a few I need to say and somewhere between the two, things I will say.

On the plus side, I achieved one of my life goals last week in that I did a stand up comedy routine in front of an audience (albeit a small audience). I just want to say that I am extremely pleased with how it went, it is definitely something I will be doing more of and, importantly, nothing I am about to say alters that, or diminishes my enjoyment of and pride in that box being ticked.

Having said that, I have been trying to use the high from that event to cover up the disturbing realisation that I am not OK, but today the tide broke over it, washing away any pretence of OKness. I guess it has always been this way for me, pulsating highs and crushing lows coming one after the other. I have been telling myself that I SHOULD be content, happy, on a high and therefore that I must be on a high. All evidence of my heart however was telling me otherwise. There's a terrible feeling of emptiness in me at the moment, a dread of each day being hollow, purposeless, aimless, wandering. I guess I have come here to talk about it because that is what I do, write about things. Here I can type the words out and know that you will read them and I don't have to subject you to the mess I am in as I press each key, living out the misery I am typing, wincing as I draw the words out of myself, crying as I read it back.

And right there we have one of the major problems. I cannot bear the thought of being burdensome on loved ones, on my friends. I hate the thought of being weak, of being a net 'need' upon people I care about. I have only ever wanted to make you proud of me, proud of knowing me, relaxed around me, happy to be with me. I want to be a giver, for my friendship and my love to come with benefits, not costs. Totally irrational of course, for everyone comes with both benefit and emotional cost, but that is how it is with me. Because I struggle with mental illness, I am determined it shall not affect outside of me, that I contain the negative aspects inside, so that none have to pay in any way for my suffering.

It is a literal insanity, because I am ill-equipped to nurture myself, and nurture surely is a natural thing to expect or hope for from friendship and love? The bleakness I struggle with will not allow me to believe I am capable of giving you the love and tenderness you deserve, and therefore that it would be selfish of me to expect it in return. The ridiculous thing is that however logical it all seems to see it in words, the experience is very different. The actual wrench I feel all the time, in every way, that I would rather rip out my heart and throw it away than let it poison someone else's life. The sheer terror of reaching out, of being in need, of expecting you to meet that need.

What has hit me, and why everything is not OK, is that I have realised I am only ever giving a part of myself to you, only the part I like to think of as relaxed, happy, loving, fun. It means you don't know what it is to be loved by me in totality, and that is an awful thing to realise. Perhaps writing this is the start of a different approach, certainly something needs to change. Perhaps what I am saying is that soon, somehow, I will need to reach out. Because it cannot go on like this, it has done so for far too long.

All the things I'd do for you (second rewrite)

I'd call you in the morning,
Because I miss your voice,
Or whisk you, without warning,
To destinations of your choice.

When I come, I'd bring you flowers,
And a book about Peru,
Y'know we could be there in twelve hours,
Give or taking one or two.

At weekends we would wander
Under blue and sun-kissed skies,
Or I'd gaze at you and ponder
The depth and beauty of your eyes.

I'd take you out, carousing,
And wake with cloudy head.
Which is in itself arousing,
Our excuse to stay in bed.

Of course I'd very often,
Turn up with a grin,
And watch you laugh and soften
At the foolish mood I'm in.

Oh, if only I could find the way
To tell you to your face,
That when I see you, any day,
My heart begins to race.

Sometimes

Sometimes, sometimes, sometimes. It's a word I often think of. Sometimes I feel that I am losing the war against depression. Right now is one of those times. I promised myself I would blog from inside depression, let the words flood out, so that in the future it will remind me what I am fighting and why I must carry on fighting, every minute of every day, no matter how tired or hopeless I feel. Fighting is sometimes all I have left. So here is my blog entry, from inside a bout of depression, a list of all the sometimes that are buzzing around in my head.

Sometimes I reach out because I need to know you are still there.
Sometimes it is so dark the blackness eats the light.
Sometimes I just want someone to hold me.
Sometimes I despair because the road is so long, and I am so tired.
Sometimes I am ashamed of me.
Sometimes, in a room full of laughter and smiles, I feel utterly alone.
Sometimes it hurts so much, I cannot express it in words.
Sometimes I spurn love because I am scared.
Sometimes, when I tell you I am OK, I am lying.
Sometimes the man in the mirror laughs at me.
Sometimes I think no good comes from any of my endeavours.
Sometimes I disgust myself.
Sometimes I envy you, and hate myself for doing so.
Sometimes I don't have the answer, and it scares me.
Sometimes I do, but pretend I don't.
Sometimes the loneliness haunts me.
Sometimes I forget who I am.
Sometimes I want to know where the bottom is, to feel the lowest point, to know it.
Sometimes I lie to protect you, sometimes I lie to protect me.
Sometimes I want to tell you how it feels, but I can't.
Sometimes I cry and I don't know why.
Sometimes the silence hurts my ears.
Sometimes you won't be able to help me.
Sometimes I'm exhausted.
Sometimes the alternative terrifies me.
Sometimes I retreat from the world and compound my problems.
Sometimes I wish I had the words to express how much I care, and yet find myself dumbstruck.
Sometimes I want to start again.
Sometimes I want to run.

Losing it

Bubbling away behind the scenes is a deep seated and mostly undisclosed fear of mine. The fear that my mind is not strong enough to fight the demons that afflict it and will one day snap, leaving me as no longer me, but some unrecognisable version unable to relate to the people around me, the people I love, the way I do now.

The trouble is, what's normal and what's not? Everyone has their idiosyncracies, little things they say or do that help define them. There is no set series of actions and reactions that everyone follows that I can hang my hat on as normality. How would I know if what I do is (or will be) taking me down a path where the me of right now would no longer recognise the me that emerges? I guess that is the key to the fear, that I will not know, I will be part of the change, all the time thinking I am the same, constant as it were, when to all those around me my actions and reactions slip further and further from the reality of now.

Some things I do at the moment give me cause for concern on occasion. I sometimes stop and talk to pussy cats and I am forever anthropomorphising stuffed animals. Do either of these things hurt anyone? No. Do they make me a bit daft? Yes. Neither of these is the point though. The fact is i know that cats do not understand me and I know full well that teddy bears are not real, but it is comfortable to pretend, it is a compensation for some of the harshness of reality. And there is the rub. I know that neither of these actions make sense, and yet I crave the comfort of doing them. I normalise the actions in my mind, I convince myself its OK to be daft. And don't get me wrong, it is totally OK to be daft.

The problem is, however, this process of normalisation. It is not just harmless, daft, eccentricity that is normalised. As an OCD sufferer, there are complicated rituals and compulsions that my mind normalises without my say so, on the quiet. There are some things I simply cannot do without performing a ritual alongside it. No-one else will have a ritual quite like mine (or for most people, at all) associated with that action and yet sitting here in the cold light of day it is absolutely the normality for me. It is what I need to do to leave the house, or cross the street or even say goodbye to a friend.

You see where my problem lies? My mind is already normalising the abnormal. Already I am doing things that go against my pure understanding of normality and replacing that interpretation with a new paradigm of normal. When does it stop, where does it stop? My fear is losing the things about me that I love, and that make others love me. I don't want people to have to understand me, tolerate me or pity me. I want the things I do to make sense and to some be absolutely magnificent. I want someone to know me as wonderful and there not need to be a 'but....' The biggest fear of all, though? That I have already lost it, I am already down that dark path and the kindness of those around me means they haven't the heart to tell me. The fear that long, long ago I stopped being me and now noone will ever be able to love the me that came into the world because he is lost, forever.

Its not a comfortable fear, but I know enough of mental illness to know the dangers that beset me.

She turns away

At times she will decline from view
And hide in life's long grass,
Leaving me to muddle through
Towards the bottom of the class.

Yet just upon the lowest point,
From her hiding place she'll spring,
My make-it-up life to annoint
And her treasured warmth to bring.

So thus we play it, to and fro,
Once here, then far away.
Collapsing as she turns to go,
Ecstatic should she stay.

Too flighty is my flippant heart
To keep her here, ensnared.
I've not the means to play that part
And see this circle sqaured.

With no possibility of parole......

Another of the facets of mental illness, and one which I have become accutely aware of, is that it carries a life sentence. Now I do not mean mental illness cannot be treated, or that it cannot go into hiding, but that it has been, is, and will always remain a factor in my life.

To look at it another way, it is not impossible to change my face or my body - not that I can conceive of any reason I should want to mind you! Any changes that are made under the knife of a surgeon or via intensive workout and the like are merely amendments to the core however, additions or changes to something whole and distinct. If I beef up my biceps, they still remain the arms that once held you, nothing can alter that fact. They remain the arms I fondly hope will wrap around a loved one once again. So it is with mental illness, any change to my behaviour or way of thinking is against a backdrop of the core me. OCD and depression alongside the heightened state of anxiety they bring are as much a part of Dave as my ridiculous face.

When I think about my state of mind, it is through the prism of past illness and experience. If I slip into a depressed state, I compare it to previous bouts of depression to see how deep, how troubling, how sustained it is likely to be. If I act on a compulsion, I do it in the knowledge of what it is, a need or compulsion within me that is always there, waiting to assert itself, waiting to fire up the anxiety and shoot that metallic taste into my mouth as adrenalin kicks in. My mood is set firmly against previous moods and feelings, it is the only way to make sense of, or understand it.

The hardest thing about this awareness is the bitter taste it leaves. Disability, whether it be physical or mental, can feel like a curse. Life can be terrbily unfair - unfair to those born at the wrong time, or in the wrong place, or unfair in the prevailing conditions of any given individual. For me, it is mental illness that defines much of my life. Whether that be joy at the symptoms losing their grip over me, or despair at a laspe into bleakness. What I am saying is that it remains a factor, always; I was born with it, I fought it, at times I defeated it, it is quiet, it is active, it is simply there - asleep or awake it makes no difference. It is. Terribly unfair, but awfully true.

So, I am left with but one conclusion - I have to accept mental illness as being as much an integral part of who I am as my hammer toes, the funny twisted bit of cartilege in my ear or my impressive Roman nose. Only by accepting it can I ever fully understand and deal with it. I cannot be me without accepting and understanding all of me. I have not been me for far too long, and it comes at its own price - happiness will always be false happiness when one is failing to accept the whole. It is the happiness of a fraction of the self, not a happiness of the totality.

And so it is, without any glee, I am Dave, I am 40 and mental illness is much a part of me as anything else. We start from acceptance, we move from there.

The Voice Within

For every voice there is a countervoice singing dischordantly. And so it is with me, because for as long as I can remember, there has always been an alternative voice speaking to me. It is another Dave, one who treats life very differently.

He is the Dave that gave up 25 years and more ago, the Dave that refused to fight, that buckled under the weight of depression. Very few of you will have met him, some of you will have heard him for occasionally this is the Dave that speaks for both of us, the one who gains the upper hand and control of the host. I feel the need to out him, talk about his background and reason, in case he ever begins to show up more often and with a louder voice.

He is the me that never really got hold of his drinking habit in his twenties and did things to his body that would constitute abuse in any polite society, the me that collapses into tears for no reason at the cruelty of the world. Think of him as the Dave that forgets people love him for who he is, and never want him to be something he cannot or will not be. For him, life is a lonely, bitter struggle against impossible odds, and he simply cannot feel the warmth of the arms that embrace him, metaphorically or in reality.

For all his negativity, I pity him, because he could so easily be me, mental illness is a lifelong fight and there are many times that both voices will speak. I can only ever take one road at a time, and the battle is to stay on the right track. His way is the simpler way, to give up, to admit defeat and let depression wreak its ruin upon me. It is so hard to explain in simple words how much pull that option has sometimes, despite the inevitable bleakness of the outcome, because fighting is tiring, and you can never win the war, only the immediate battle.

Of course, that is why I must never let his voice become my voice. I have to rage against the dying of the light, I have to gird myself and spring into action in every battle, no matter how hopeless or difficult it seems, because it is simply the only option that keeps me whole. I said I pity him, and with good reason, because for him the war is over, and there is only bleakness and despair, his demons cannot be bested and they will take him, piece by piece, until there is nothing left. However low I get, however desperate life seems, I am still fighting. I cannot begin to comprehend the horror of life as my countervoice.